Part 1: Two Weeks Annual Leave

That was the deal. Five days of overtime for two weeks annual leave. I had it all planned out. A spa day, a weekend in Paris, mum’s 60th and a trip to Wales with my closest friends. Great.

It had all started off so promisingly. I was visiting my girlfriend Charlotte in Bristol where she had just finished her degree. Joining in the celebrations we made our way to a pub, The Hobgoblin, where a crude drawing of Nigel Farage granted us a worthy second place in the weekly pub quiz. We never do well in pub quizzes I remember thinking. This was certain to be a great two weeks and for our hard work we were rewarded with a round of drinks.

We moved on to the next location where outside I found a ten-pound note on the floor. Anyone would have thought I’d just discovered I was royalty, and for the brief hour it lasted, I was. Ten pounds quickly became fried chicken and chips and a satisfying conclusion to a much-deserved night. Well, on Charlotte’s behalf at least.

The next morning arrived and Charlotte and I were making our way to a board games café for some brunch and a detox. No sooner than five minutes after our arrival my toes felt a little sore and a bit hot. I went to the toilet to inspect my foot, assuming I might have put my Lymphoedema through a bit too much the night before.

I couldn’t get my shoe off. It hurt too much. This was not normal. Eventually, after loosening every lace I managed to free my foot and upon touching it I felt a considerable amount of pain. I hopped to the exit of the café and made a call to 111.

After a brief discussion surrounding my symptoms it was clear I needed to visit a doctor quickly.

We made our way to the Walk In Clinic, which was situated in a Boots ten minutes away from where we were. By this point I couldn’t walk. The pain had moved up to my shin and that’s when I started to panic. There was no doctor in but the nurse prescribed me some antibiotics. Charlotte made her way down to the pharmacy. I sat down in the Marie Claire section of the make-up department next to two ladies.

“Are you alright?” one asked. I was not all right. In fact it’s safe to say I’ve never been so not all right in my life. I was all wrong and in a lot of pain, which had now reached my groin. It felt like lightening bolts pulsating from toe to thigh. I began to shake, my heart racing and my eyes tearing.

With that we headed to A&E, which was characteristically overflowing with every type of ailment known to man. I was put to the front of the queue and was soon seen by a doctor. I was later told had there been any delay it could have been fatal. That’s always good. Charlotte rang my parents and told them I was going to be okay. We didn’t want to scare them as they were preparing for mum’s 60th.

“Don’t worry, cellulitis can be cleared in a day or so with some antibiotics” I was informed by the doctor. Mum had always warned me about cellulitis, but until you experience it you don’t take notice, much like receiving your first speeding ticket. The infection was already pretty heavy, so I was asked to stay in overnight just in case.

They marked around the red patches with a pen so they could tell whether the infection was spreading. I was put on a drip to keep hydrated. At this point I felt a little better as I was in safe hands and it was only a night’s stay so nothing too tragic. We passed the time with card games and smartphones before I knocked back some painkillers and tried to get some sleep.

 

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Please do not cross the line

 

Absolutely no sleep was gained that night. I had neither pillow nor blanket and the sounds of the emergency department bounced around my head like a pinball. I tossed and turned using my hoodie as a makeshift pillow, eavesdropping on the quarrels of neighbouring patients. The codeine I was given made my stomach twist, making me squirm. Eventually morning arrived and yesterday’s doctor pulled back my gown for the big reveal. I could see by the look on his face there was not too much to smile about. It had spread and my whole leg was inflamed with a dark red. They took some blood and sent me up to another ward where a specialist saw me.

 

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This was life now

 

There’s something oddly unsettling about a doctor staring inquisitively at your body. He admitted right then and there that he wasn’t sure why the antibiotics hadn’t worked and why it was the infection was so aggressive. I sat there just as clueless as he was. “It will all be fine”, I was told, and on that note he left the ward. I wasn’t scared at this point, more uncertain than anything.

I stayed in that ward for about five hours and amongst all the commotion something stood out for me. A nurse said I didn’t need my leg raised as I was on a bed. As you might know “Lymphoedema 101” would state otherwise. It’s nothing major, it just highlights how little is known about the condition.

Eventually my time came to leave my temporary bed. I got out of it with the help of the nurse and sat down in a wheelchair. Walking was not an option. From here I was transported across the hospital to a new ward, one that I now refer to as Death’s Corridor, and yes, it is as fun as it sounds.

If you want to know anymore about my hospital experience please get in contact. Cellulitis can be life threatening, if you don’t know what signs to look for, you can find some tips here.

8 comments

  1. Alan Kearns · September 16

    Quite familiar Josh, well written buddy!

    Liked by 1 person

    • leftlegfirst · September 16

      Thanks Alan! I should imagine this resonates with any lymphie who has had cellulitis…

      Like

  2. Pingback: Part 2: Death’s Corridor | Left Leg First
  3. Paula VM · September 20

    Glad I found your blog, my son was born with it also in his left leg he is turning 15 Sept. 30. Just went through a round of compression bandaging and has a new stocking with toe cap and night garment.

    Like

    • leftlegfirst · September 25

      Hi Paula, great to hear your son has found treatment. I need to get a night garment myself! This is a great, positive blog on lymphoedema by a woman called Alexa: https://thelymphielife.com/ – you might find it useful too as she has lots of links and resources on there. Please don’t hesitate to put your son in contact if he needs some advice. Big happy birthday to him in advance!

      Like

  4. Elaine · September 20

    Shudder; this resonates all too clearly, even though my experience was five years ago! One thing to add: I had virtually no pain and yet had a really severe cellulitis infection. So it doesn’t always hurt.

    Like

  5. jackie eccles · September 28

    Again i read this and can relate so much…if i had to tell you my story it would take me all week. sadly 13yrs of misdiagnosis…yes 13yrs…2 yrs of permanent antibiotics…and was told in july this year that i have been wrongly misdiagnosed . im struggling to deal with things at the moment because of this. reading your blog takes my mind off things for a while…thanks for sharing

    Like

  6. Pingback: What does Lymphoedema look like across the world? | Left Leg First

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