Travelling with Lymphoedema: The Airport

I’m currently travelling around South East Asia for four months. My blog aims to spread awareness on lymphoedema as well as highlighting the highs and lows of travelling with the condition. This post explores some of my experiences of using airports and how it effects my condition.

My earliest memories of the airport come in the form of my father herding my family like cattle into the back of his car at two in the morning, a good five years before we were due to check-in. The issuing of passports and other such documents were usually left till we had arrived at the airport and without fail, every holiday, one of my dear siblings (you know who you are) would cause some sort of commotion. Nothing major. You know, the usual last minute panics like forgetting to turn off the hair-straighteners or deciding to change your outfit whilst the rest of your family sit in the car waiting and cursing your willingness to jeopardise the one holiday we were going to have that year.

Things were much simpler back then. I had no responsibility whatsoever except, of course, carefully selecting the sweets which would stop the families ears popping.

Fast-forward fifteen or so years and I still take that responsibility very seriously, but I also have one or two more that I didn’t expect to have. If you’ve read any of my previous blogs, or perhaps even the title of this blog, you’ll know that I have lymphoedema in my left leg (shock horror) and the airport is yet another experience made that little bit harder by the condition.

Make the airline aware in advance

Leaving the UK was a mixed experience. We checked in on time, said goodbye to the parents over breakfast, and even found the time to buy a puzzle book for the flight. We were flying with Qatar Airways and a few days before we were due to depart, I decided to give their customer service team a quick call to let them know about my leg. In the end, after a few easy conversations, they were able to seat me right at the front (not in business class to my disappointment) which gave me the space to keep my leg stretched out.

We flew to Denpasar (Bali) via Doha, which amounted to fifteen hours spent in the air. Combine that with queuing and waiting at both ends for security, baggage and boarding and you have yourself a swollen leg. My lymphoedema really didn’t like the pressure. I could feel things twitching and bloating internally which caused me some level of discomfort. Before I left, my doctor explained to me that I could be at my most vulnerable after a lengthy flight. My body was already working overtime to make sure my lymphoedema was in check during the journey, so suddenly exposing it to the intense temperatures, biting insects and other threats of South East Asia was something to be aware of.

Somehow, you’ve got to keep the lymph moving. Be prepared for some strange looks from other passengers as they will wonder why you are sat on the floor of a plane stroking your body. Do it anyway, you’ll thank yourself later. Drink plenty of water and make sure you wear your compression garment.

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It all stacks up

At the time of this blog post I have already been travelling for just over a month with three more still to go. I started my adventure in full health with my leg in a good place but since then, there have been ups and downs with pain and comfort levels fluctuating daily.

In total I plan to visit eight countries across Asia. This means a lot of journeys using public transport which, as you’ll know, is all a part of travelling life. The thing is, there is only so much you can do to take care of your condition and some external factors you simply can’t help. Intense nature, mosquito bites, unexpected walks and traffic jams are inevitable. For example, whilst travelling around Indonesia Mt Agung showed signs of erupting and my flight to Singapore was cancelled. This meant a last minute rush to get off the island to avoid missing out on other plans. I started that process in great shape; I ended it tired, sore and stressed.

I’ve tried to do things with a typical traveler approach, going with the flow and all that, but that lack of structure means last minute decisions are guaranteed. An internal flight here and there enables you to explore more but it can also mean no time to make airlines aware of medical conditions, standing in long queues with a very heavy rucksack, and sacrificing your health and comfort for the chance to do something amazing. In spite of this however, if you look after yourself during the down time, you’ll be fine when the tougher times come calling.

6 comments

  1. georgiebaker · December 14

    Very very funny xxx

    Sent from my iPhone

    >

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  2. Ganga Kadirgamar · December 14

    hope all is going well – keep blogging – very informative and great pics(as well as laughs!) xx

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  3. Karen · December 15

    Thanks for writing about the realities and how they can all be faced alongside adventures and positivity. Your blog is an encouragement. Thank you.

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  4. Katrina · December 16

    Great blog and how brave if you to travel so far and wide with Lymphedema. I went to Spain last year and was worried as every time I’ve been to Europe my leg has given me trouble (I have lymphangiomatoais with secondary Lymphedema in right leg) probably because i didn’t know i shouldn’t have dairy (no cheese in Europe ahhhh!!!) But this time was great as I pretty much fasted 2 weeks prior and total liquids 2 days before and on the flight. And Active Compression garments (Solidea) made a huge dif too. So I wish you luck on your journey and keep us posted!!

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  5. Adi Arya · December 30

    Hi ! Good luck, take care & hope u have a wonderful trip. Hope u r not going to India. There really r no good resources there. I am from there so I know a little. Try to take Boeing 787s and AirbusA350s on legs where it’s possible. Probably too late to change flights now. But these planes have higher cabin pressure. I don’t know if u believe in taking Horse Chestnut, Butchers Broom, Selenium, Vit E etc. Deep breathing, keeping leg muscles active & leg elevated, lots of liquids & low sodium seem to b important also

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